LYME MEDIA CAMPAIGN
The Lyme community is launching a photo campaign to get more media attention for Lyme. They are asking all affected with Lyme to take a photo and email it to firstname.lastname@example.org. DEADLINE 12/1/13
For more information please go to http://lyme300000.wordpress.com/
If you don’t have Lyme and won’t be taking a photo but want to help, have no fear……we also need to reach out to the media to raise their eyebrows, giving them no other choice but to start giving Lyme the media attention it deserves! Here’s how:
TAKE ACTION! EMAIL 2 LETTERS
Please email Michael Mason, the editor of the health section at the NY Times, to demand that they start giving coverage to this story: email@example.com. Here’s a letter that you can copy and paste:
Dear Mr. Mason,
I am writing to request that the N.Y. Times gives more coverage to Lyme disease. With the recent CDC announcement that there are likely 300,000 new Lyme cases annually, it is clear that we are all at risk for this infectious disease and readers need to be better informed. While it’s encouraging that researcher Monica Embers was asked to provide an editorial in the recent NY Times series about Lyme disease, why has there yet to be a single article discussing her groundbreaking 2012 research showing that the Lyme infection persisted in rhesus monkeys? Why has the NY Times never discussed the conflicts of interest by the researchers who create the Lyme disease guidelines who have significant commercial interests in Lyme disease tests and vaccines:http://ire.org/blog/transparency-watch/2013/05/20/foia-request-cdc-took-five-years-fulfill/? And why has there been no investigation of the financial interests at play with HMOs and their lack of healthcare coverage of chronic Lyme disease: http://abcnews.go.com/Nightline/story?id=128770&page=1?
Please start giving proper coverage to this serious epidemic.
Your Name here
Please email Lyle Petersen, Director of the CDC Division of Vector-Borne Diseases, to demand that they change their Lyme disease guidelines: LRPetersen@cdc.gov. Here’s a letter that you can copy and paste:
Dear Mr. Petersen,
With the recent CDC announcement that there are likely 300,000 new Lyme cases annually, it is clear that more needs to be done to address this serious public health crisis. Recent disclosures about conflicts of interest by CDC employees and other researchers due to significant financial interests in Lyme disease tests and vaccines raise serious questions about whether the CDC is upholding its duty to protect the public.
The CDC has previously failed to acknowledge that a chronic infection persists, while many patients, doctors, and researchers believe that it does. Seventy-seven peer-reviewed studies from 1977 to 2012 show that the Lyme infection can persist despite the recommended antibiotic treatment: www.lymeinfo.net/medical/LDPersist.pdf
The CDC is charged with protecting the public interest and I am writing to demand that changes in Lyme disease policy be made. I want the CDC to eliminate potential conflicts of interest and to focus research efforts on establishing whether tick-borne infections persist past the recommended treatment so that patients can receive proper treatment and we can safely establish blood donor guidelines
Your name here
The only thing I know is this: I am full of wounds and still standing on my feet.
Chronic migraine is defined as having migraines at least 15 days every month, lasting four hours or more.
Chronic Migraine in America 2013 [x]
Report a Case of Tick-Borne Illness
Earlier this year, the Centers for Disease Control and Prevention (CDC) announced that Lyme disease is 10 times more prevalent than previously reported, with some 300,000 sufferers across the U.S. As a result, more true Lyme cases should be recognized in the Northeast, Midwest and West. But much of the United States, including the Southeast, has been left out of the equation despite emerging evidence that Lyme or a Lyme-like infection may be present there as well.
Tell Us Your Story*
Go HERE to plot where you think you encountered an infected tick and in 100 words or less, tell us about your experience (or your pet’s experience) with tick-borne illness, including any diagnosis, symptoms and what kind of tick it was. For the full story on Lyme and Lyme-like infection in the U.S., visit DiscoverMagazine.com/Lyme.
- ¾ cup whole raw cashews (or 1 cup cashew flour)
- 3 tablespoons almond flour
- ¼ cup coconut flour
- ½ teaspoon baking soda
- ½ teaspoon salt
- dash teaspoon garlic granules
- 2 large eggs
- 2 tablespoons almond milk
- ½ teaspoon apple cider vinegar
- 2½ tablespoons extra-virgin olive oil
- 1 tablespoon cold water
- 1 tablespoon fresh parsley
- 2 tablespoons fresh basil
11/9/13 (2 more days)
So this is what a PICC line looks like and hence my nervousness. A PICC line is a long, slender, flexible tub that is inserted into a vein in the arm and the tube is pushed up that vein until the catheter tip reaches a large vein in the chest near the heart. Sounds fun right?!!! So as you can see from the photos I posted, I’m slightly freaked, especially with a very energetic 2 1/2 year old. Of course the pics I show above are with the PICC line being exposed and it will only look like this when I need to get my meds. The other portion of the day it will be wrapped up tight so the tubes don’t dangle and catch on anything. For someone who already experiences major anxiety as part of this wonderful disease, this is clearly giving me a heart attack. Let’s just get this over with people!!!!!!!!
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