Doctor: You’ll get over her, Isaac. Just takes a little bit of time. You’ll see.
Isaac: Did he seriously just say you’ll see?
A reminder for all of us waiting for a cure.
Just a set of quick photos I did for class.
Chronic illness 101.
So, I was wanting validation and expression and I took nontoxic washable markers and tried to draw my pain onto my body. Very literally making my invisible pain visible.
(Sorry, don’t have spoons for image descriptions right now. Will write later.)
9 words to make you really think.
This. Is. Profound.
This is something everyone should see
Photoset reblogged from with 1,130 notes
There have been several studies that found a strong link between Lyme disease and Amyotrophic Lateral Sclerosis. The Halperin paper is one. The Halperin paper found Lyme infection in nearly all ALS patients in their study group, but Halperin, a long-time “debunker” of chronic Lyme disease dismissed this as a “coincidence” and the paper’s authors even fudged the numbers in their summary to make the Lyme infection rate seem “only” 47%.
Not too long ago, scientific research papers were freely available online but nowadays, most are zealously guarded by a few publishing conglomerates that charge about the same for an article as you would expect to pay for the latest music DVD of a superstar. When you purchase, you give them your name, address, email address and IP address and have to agree not to reproduce the article. The whole system is designed to keep medical breakthroughs secret to the public in general and journalists in particular, and to intimidate and prosecute those who seek to uncover such secret knowledge. Aaron Swartz sacrificed his life trying to change this situation.
No wonder that the average person with ALS has no inkling of the fact that there is solid research, showing that ALS is strongly associated with Lyme disease.
The Halperin paper mentions in its first paragraph (green box below) that nine out of nineteen ALS patients tested positive for Lyme. The notoriously unreliable ELISA test was used, a test with an unacceptably high proportion of false negatives. So that would be 47% of ALS patients testing positive for Lyme.
Page 1 of 60